Abstract Library

#4520 Is late diagnosis and carcinoid heart disease (CaHD) associated with deprivation index? – An audit of practice and assessment of deprivation index in Sheffield ENETS Centre of Excellence

Introduction: Delays to diagnosis in neuroendocrine neoplasms is a world-wide problem. Challenges and inequities recognised include low awareness and access to expert centres. Indices of multiple deprivation (IMD) assess the least to the most deprived areas in the UK, 1 being the most deprived of the 10 deciles.

Conference:

Presenting Author: Munir A

Authors: Abdella O, Abdelhaleem E, Kwok W, Harber J, Rowett O,

Keywords: Index of multiple deprivation, carcinoid syndrome, carcinoid heart disease,

#4510 Follow-up analysis of group nutritional education in patients with neuroendocrine neoplasms (GEDNEN Course): A novel approach with proven acceptability

Introduction: Structured group education demonstrates improved outcomes in peri-operative health optimisation and diabetes mellitus. We devised and delivered a novel in person nutrition/dietary education programme for patients with neuroendocrine neoplasms (NENs) at the Sheffield ENETS Centre of Excellence.

Conference:

Presenting Author: Munir A

Authors: Wen Loh E, Walsh E, Bisson H, Ahmed Z, Dancyger-Stevens L,

Keywords: Group Education, Nutrition, Neuroendocrine Neoplasm, Novel Tool,

#3839 The impact of the COVID-19 pandemic on neuroendocrine tumor (NET) service recovery and patient perceptions in Sheffield NET Centre UK – A quantitative and qualitative analysis 2017-2021

Introduction: The COVID-19 pandemic has affected the delivery of NET services and patient care. To assess the evolution of NET services during and peri-pandemic, we retrospectively analysed NET services and patient perceptions between 2017-2021.

Conference:

Presenting Author: Munir A

Authors: Munir A, Dabke T, Finnen J,

Keywords: COVID-19, NET, Service, Patient Satisfaction, Therapy, Psychology,

#3628 Retrospective survival analysis of patients with small bowel neuroendocrine tumors (NETs) and analysis of patient satisfaction post covid pandemic in the Sheffield European Neuroendocrine Tumor Society (ENETS) Centre of Excellence (COE)

Introduction: Small bowel NETs are the commonest primary malignancies of the small bowel. Incidence is increasing, but it is often still diagnosed at a late stage. The effects of COVID-19 may have affected patient satisfaction. Reported survival is quoted at 90% at 1 year and 70% at 5 years for all stages.

Conference:

Presenting Author:

Authors: Kwok W, Finnen J, Munir A,

Keywords: Neuroendocrine, cell, research, Neuroendocrine tumor, Survival analysis, patient satisfaction,

#3287 Utilization of next generation sequencing in NET/NEC management and practice patterns: A prospective survey of global NET specialists

Introduction: Next generation sequencing based somatic tumor mutation as well as germline mutation data is being increasingly used in cancer management. Pan tumor type FDA approval for NTRK fusion, intermediated-high tumor mutation burden and MSI high status has paved way for tissue agnostic molecularly targeted therapies. Utilization of NGS in neuroendocrine tumor (NET) and neuroendocrine carcinoma (NEC) is currently unknown.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author:

Authors: Chauhan A, Munir A, Hernando J, Leeuwaarde R, Zhang P,

Keywords: NGS, NEC, NET,