#4222
Quali-NET: A prospective study on patient-reported quality of life in neuroendocrine neoplasms
Introduction:
Neuroendocrine neoplasms of the lung (LNEN) or gastro-enteropancreatic tract (GEPNEN) are typically slow-growing, leading to longer overall survival, and resembling chronic illnesses. Therefore, focus on quality of life (QoL) is crucial. While brief studies have been done, comprehensive, long-term studies are needed.
Conference:
Presenting Author:
Islam O
Authors:
Islam O,
Depauw L,
van der Massen I,
Simoens M,
Galdermans D,
Keywords:
GEP-NEN,
LNEN,
Quality of life,
Longitudinal data,
#2130
Remote Tracking of Symptoms, QoL and Wellbeing within the New Wales NET Service
Introduction:
Patients with NETs have worse health-related quality of life (HRQoL) than the general population. Technological advances have significantly increased electronic patient-reported outcome (ePRO) data collection capabilities. There is little longitudinal PRO/ePRO data and limited data on gastrointestinal symptoms, particularly ‘diarrhoea’, in NET patients.
Conference:
15th Annual ENETSConcerence (2018)
Presenting Author:
Reynolds M
Authors:
Reynolds M,
Tucker L,
Ankita B,
Powell C,
Hopps R,
Keywords:
Quality of Life,
Symptoms,
ePRO,
Diarrhoea,
NET service,
Longitudinal Data,
CABARET,
app,
#2002
Pulmonary Function Test Physiology and Progression in Diffuse Idiopathic Pulmonary Neuroendocrine Cell Hyperplasia
Introduction:
Diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare condition characterised by a generalised proliferation of pulmonary neuroendocrine cells within the respiratory epithelium. Little is known of its affects on pulmonary function both at the time of diagnosis and prospectively.
Conference:
15th Annual ENETSConcerence (2018)
Presenting Author:
Barlow J
Authors:
Barlow J,
Ryan D,
Mansoor W,
Howell M,
Clayton N,
Keywords:
Neuroendocrine,
Cell,
Pulmonary,
Function,
Hyperplasia,
Pulmonary function,
Diffuse idiopathic pulmonary neuroendocrine cell hyperplasia,
DIPNECH,
Physiology,
