Abstract Library

#2296 First Patient Survey about Tumor - Associated Fatigue in NEN

Introduction: Tumor-associated fatigue (TrF) is a debilitating condition occurring during the course of the tumor disease, and even ongoing after all tumor specific therapies are completed. The syndrome consists of chronic fatigue, sleep disturbances, severe pain, brain-fog and is underestimated by both, patients and doctors. Diagnosis is made according to the criteria by Cella (Cella 2001), although it is felt not to be sufficient.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Germany P

Authors: Banz S, Mellar K, Letsch A, Scheibenbogen C, Pavel M,

Keywords: Tumor related fatigue, online survey, support group, Quality of Life, ability of work,

#1767 International Patient Survey of Physical, Emotional and Informational Challenges when Living with NETs: Understanding the Unmet Needs

Introduction: The usefulness of information sources used by NET patients is rarely explored by patient surveys of disease burden/impact on daily living, and may be key to optimizing care.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Khan M

Authors: Khan M, Majdi A, Goldstein G, Mellar K, Watts R,

Keywords: net, patients, survey, symptoms, unmet needs,

#1447 Clinicopathologic Features, Management and Outcome of Neuroendocrine Tumors (NETs) in MEN1: The Verona Multidisciplinary PlaNET Group

Introduction: Gastroenteropancreatic endocrine tumors (GEP-NETs) are a frequent manifestation of MEN1. They represent an important prognostic factor in these patients. There is still a debate on their management, mainly on surgical strategy, due to their multicentricity and high recurrence rate.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author:

Authors: Cosaro E, Mella A, Cingarlini S, Grego E, Ortolani S,

Keywords: MEN1, GEP-NET, management,

#1225 Everolimus in Patients (pts) with Advanced Lung Carcinoids: Evaluation of Median Progression Free Survival (PFS) and Median Time to First Dose Decrease or Discontinuation (DDD)

Introduction: Treatment of well-differentiated (WD) lung neuroendocrine tumors (NETs) is challenging. Everolimus (mTOR inhibitor) has shown encouraging results in digestive NETs but data about its activity on lung carcinoid are sparse.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Gianoncelli L, Guigay J, Caramella C, Borget I, Mir O,

Keywords: lung carcinoid, everolimus, mTOR inhibitor,

#998 Intra and Interobserver Reproducibility of CT and MRI for Measurement of Liver Metastasis as a Basis of RECIST Evaluation in Patients with Neuroendocrine Tumors

Introduction: The reliability of RECIST evaluation in patients with NET has not yet been analyzed.

Conference: 11th Annual ENETSConcerence (2014)

Presenting Author:

Authors: Arfi Rouche J, Foulon S, Caramella C, Ternes N, Planchard D,

Keywords: CT, MRI, liver, metastasis, reproducibility, RECIST,