Abstract Library

#2808 Clinical Features and Quality of Life in Patients with Gastroenteropancreatic Neuroendocrine Tumors from Chile

Introduction: Clinical features of Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs) and their repercussions on health-related quality of life (HRQoL) have not been widely studied in Hispanic populations.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Carrillo D

Authors: Carrillo D, Munoz-Anguita G, Madison A, Retamal I, Pinto M,

Keywords: Neuroendocrine, Carcinoid, Health-related quality of life.,

#2797 Assessment of Quality of Life in Patients with Neuroendocrine Tumours: Results of a Systematic Literature Review

Introduction: Health related quality of life (HRQoL) is increasingly important as a concept reflecting the patients’ perspective in conjunction with the disease presentation severity and treatment. Understanding the impact of treatment on neuroendocrine tumour (NET) patients’ HRQoL is paramount given the nature of the disease.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author:

Authors: Fountain D, Leeuwenkamp O, Watson C, Longworth L,

Keywords: Gastro-entero-pancreatic neuroendocrine tumours, Quality of Life, 177Lu-Dotatate, EORTC QLQ-C30,

#2146 Clinical Utility (CU) Evaluation of the Health-Related Quality-of-Life (HRQoL) QLQ-GINET21 Questionnaire (QNR) in the Treatment of Patients (pts) with Gastrointestinal (GI) Neuroendocrine Tumors (NETs). QUALINETS Study

Introduction: QLQ-GINET21 for pts with GI-NETs covers muscle/bone pain, body image, information, sexual function, symptoms, social function and disease-related concerns.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Gallego J, Reig O, Sastre J, Garcia I, Segura A,

Keywords: neuroendocrine tumors, Quality of Life, QLQ-GINET21, utility,

#2130 Remote Tracking of Symptoms, QoL and Wellbeing within the New Wales NET Service

Introduction: Patients with NETs have worse health-related quality of life (HRQoL) than the general population. Technological advances have significantly increased electronic patient-reported outcome (ePRO) data collection capabilities. There is little longitudinal PRO/ePRO data and limited data on gastrointestinal symptoms, particularly ‘diarrhoea’, in NET patients.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Reynolds M

Authors: Reynolds M, Tucker L, Ankita B, Powell C, Hopps R,

Keywords: Quality of Life, Symptoms, ePRO, Diarrhoea, NET service, Longitudinal Data, CABARET, app,

#2058 On-going Evaluation of the Use of Resources and the Costs (UR/C) Associated with Controlled or Uncontrolled Carcinoid Syndrome (CS) in Patients (pts) with Neuroendocrine Tumours (NETs): RECOSY Study Design

Introduction: NET pts have high rates of mortality and morbidity, as wells as decreased health-related quality of life (HRQoL) due to CS. Though there is little research on the economic impact of CS, recent studies show that some symptoms, i.e. diarrhoea, are associated with higher healthcare expenditure and use of resources.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Custodio A, Carmona-Bayonas A, Villabona C, Perez M, de La Cruz G,

Keywords: neuroendocrine tumors, carcinoid syndrome, use of resources, costs,