Abstract Library

#4328 Health-related quality of life (HRQL) and supportive care needs (SCN) of gastroenteropancreatic neuroendocrine tumours (GEP-NET) in a Swiss NET Centre

Introduction: Health-related quality of life (HRQL) and supportive care needs (SCN) of patients with gastroenteropancreatic neuroendocrine tumours (GEP-NET) remain understudied. Assessing and identifying the affected domains of HRQL and SCN of the patients with GEP-NET is part of the nursing practice and may contribute to adapt the nursing care.

Conference:

Presenting Author: Ho J

Authors: Ho J, Abdulle A, Messerli O, Eicher M, Schaefer N,

Keywords: gastroenteropancreatic neuroendocrine tumour, health related quality of life, quality of life, supportive care needs, unmet needs,

#4239 Implementation of a new, nurse-led clinic (NLC) for neuroendocrine tumor (NET) patients

Introduction: There is international evidence supporting nurse-led services for people with chronic diseases in reducing hospitalisations, symptom improvement and lifestyle, and patient satisfaction. Patients with NET often have high symptoms burden and psychosocial distress in the context of indolent disease. Our centre recently implemented a (NLC) to provide complex care support for patients with NET.

Conference:

Presenting Author:

Authors: Wakelin K, Michael M, Kong G, Rogers M, Natkunarajah N,

Keywords: Nurse-led care, Multidisciplinary care, Supportive care, Symptom management, Patient support,

#3482 PANDORA-2 protocol - Intervention study to improve quality of life in patients with small (≤2 cm) non-functional pancreatic neuroendocrine tumors

Introduction: Current guidelines changed the treatment strategy for small (≤2cm) non-functioning pancreatic neuroendocrine tumors (NF-pNET) from tumor resection to an active surveillance strategy. The previous PANDORA-1 (2021) study showed excellent clinical outcomes after a median follow-up of 17 months, where 89% of patients had pNETs without any tumor growth and only 3% of patients had tumor growth leading to a resection. Despite these results, the quality of life (QoL) was decreased at baseline and during follow-up. Furthermore, there was suboptimal adherence to the advised surveillance protocol.

Conference:

Presenting Author: Chen J

Authors: Chen J, Heidsma C, Engelsman A, Nieveen van Dijkum E,

Keywords: neuroendocrine, pancreatic, quality of life, ≤2 cm, non-functional, protocol,

#3220 OPERA: Observational study of perception of information and quality of life (QoL) in patients with gastroenteropancreatic neuroendocrine tumors (GEP-NETs) starting Lanreotide Autogel (LAN)

Introduction: The perception of information provided to patients with cancer upon diagnosis may influence adherence to treatment and QoL, but data are scarce in GEP-NETs.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Hautefeuille V

Authors: Hautefeuille V, Walter T, Do Cao C, Coriat R, Dominguez S,

Keywords: somatostatin analogues, quality of life, QLQINFO25, QLQC30, gastroenteropancreatic neuroendocrine tumor,

#2179 Exploring Nutrition Screening and Management Practices amongst Health Professionals Managing Patients with Neuroendocrine Tumors

Introduction: Patient’s with neuroendocrine tumours (NET) are at nutritional risk due to symptoms and side-effects of treatment. Current evidence based guidelines lack information regarding optimal nutritional management and supportive care.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Kennedy E

Authors: Kennedy E, Kiss N, Michael M, Gough K, Drosdowsky A,

Keywords: neuroendocrine, health professional, nutrition, symptoms, malnutrition,