Abstract Library

#4318 Management of asymptomatic, sporadic, small non-functional pancreatic neuroendocrine tumours: Active surveillance or surgery? A retrospective cohort study in the SEER database

Introduction: Non-functional pancreatic neuroendocrine tumours (NF-PanNETs) exhibit a wide heterogeneity of aggressiveness and optimal management of asymptomatic, sporadic, small PanNETs remains controversial.

Conference:

Presenting Author: Chen C

Authors: Chen C, Zheng Z, Li P, Hu H,

Keywords: Pancreatic neuroendocrine tumour, surveillance, surgery, prognosis, SEER,

#4288 A virtual patient handbook

Introduction: Neuroendocrine cancer has lower public recognition than more common cancer types and when this is combined with geographical inequalities in neuroendocrine cancer care across the UK, patients can often find themselves reliant on online resources to educate themselves about the disease.

Conference:

Presenting Author:

Authors: Chesser B,

Keywords: patient handbook, digital resources, patient information, multi-media,

#4096 Co-production of patient information: A model for today’s practice

Introduction: According to the British Medical Association, good quality patient information is fundamental to effective, patient-centred, quality care. It rightly considers patients as partners in their care, “Co-production involves engaging groups of people who use healthcare services, in equal partnership; at the earliest stages of service design, development and evaluation. It acknowledges that people with ‘lived experience’ of a particular condition are often best placed to advise on what support and services will make a positive difference to their lives.” (NHS England) The re-introduction of a liver transplantation programme in the UK for selected patients with a Neuroendocrine Neoplasm offers new opportunities to improve survival and quality of life: good quality information is a key tool for informed consent.

Conference:

Presenting Author:

Authors: Jervis N, Ellis C, Smith S, Shah T, Lewis K,

Keywords: Liver Transplantation, Co-production, Patient Information, Lived Experience Contribution,

#3579 Setting up of a national liver transplant programme for neuroendocrine tumor liver metastases in UK and Ireland: Opportunities for collaborations in clinical study and research

Introduction: Liver transplantation [LT] for unresectable neuroendocrine tumor liver metastases [NET LM] is one of three new cancer indications in UK and Ireland. Transplant benefit is only proven using the Milan criteria so patient selection needs to be meticulously objective. We have therefore created a national MDT to provide a formal framework, aid patient selection, oversee data collection, monitor performance, provide training and education, deliver equity of access, facilitate research and clinical trials.

Conference:

Presenting Author:

Authors: Shah T, Gibbs P, Moore J, Venkataraman H, O'Toole D,

Keywords: liver transplantation, neuroendocrine tumor liver metastasis, neuroendocrine tumor surgery,

#3288 Not waving but drowning?

Introduction: The disruptive impact COVID19 has had on cancer care availability and resources may yet have far-reaching consequences, physically and mentally, for those with neuroendocrine Cancer.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Jervis N

Authors: Jervis N,

Keywords: support, unmet needs, psychosocial care, impact of COVID,